curve-balls

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Ozziegrl's avatar
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In life you never know what is around the corner. After being in remission since 1999, I was re-diagnosed with Sarcoidosis (again on my lungs) 11th April this year (the day I got my test results back). The day after I was informed of this I found out that a good friend of mine (that I went through Kapooka with back in 1991) has stage 4 pancreatic cancer. She is fighting to have more time and is working her way through a bucket list though her prognosis is not good - time is her enemy. It makes me feel like my health issues are nothing compared to hers - mine is not terminal.

My treatment for the sarcoidosis was to be placed on a high dose of prednisolone and because of this it has caused other issues as well. Because the prednisolone can cause insulin not to work properly in the body I now have type 2 diabetes. I am controlling this with medications and diet. At first they thought that I would have to be put on insulin injections so I have dodged a bullet there.

The prednisolone has also cause me to have problems with my eye sight. It gave me a huge fright as everything began to go all blurry - even when wearing my glasses. I couldn't make out any details be it a sign or be it peoples features. Once my blood glucose levels started to come down my sight returned although it did a complete 180. Instead of needing my glasses for distance, I needed them for reading. It has changed again now so that I am back to my original set of glasses though I now have glasses for reading as well. Between the two I get by. I am hoping that once I am off the prednisolone that everything will go back to normal - no sight issues, no diabetes. *Fingers crossed*

I saw my specialist today and received a good report. My x-rays of my lungs came back clear of the sarcoidosis so he is starting to reduce my dosage of prednisolone as of the 1st of July. Each month I take it down by 5mg (July - 20mg, August - 15mg, September - 10mg, October - 5mg). I see him again on 3rd October 13. I was lucky enough to be able to be fitted in for a CT Scan this afternoon as well so there is both CT scan and x-ray to use as a reference point if the sarcoidosis returns again as the prednisolone is reduced. There is no other way to monitor it - no simple blood test since sarcoidosis can be so varied. Maybe someday someone will invent a test to monitor it easier. One can but hope.

 

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